Thanks all for you continued help. If you have any further questions, please speak to a doctor or nurse caring for you. since having nasal polyp surgery my migraines have progressively got worse (everyday now) and now I have one nostril that leaks clear watery fluid if I standup or tilt my head down. I still have very much positional headache and brainfog. You can register here: https://www.theilcfoundation.org/annual ... Read More, Dear members, Today we updated our logo with a fresh, modern version, and we hope you like it! A spinal fluid leak occurs when CSF escapes from the dura. There is very little awareness amongst the general public and very little support for those in need. My first BP in September showed some improvement mainly with balance and nausea. Think CSF Leak! I went in for lumbar disc repair June 15th 2020 and he tore the dura mater. A week before I had one also. Used to have running nose and cold like symptoms all the time. Bed rest; Hydration (2-3 litres per day) IV Caffeine infusions; Strong coffee or caffeine tablets; Invasive. We believe in genuine connections, an atmosphere of trust, a desire for wellbeing, and meaningful impact. I had my 2 blood patch 11/5/20. This includes 1-2 weeks of bed rest. They put 20 cc in two holes (40 cc total) , 48 hs hours bed rest without pillow and bed rest since then. My doctor recommended one more BP to give it a chance, but last one, since he thinks that ... Read More, Check out this interdisciplinary virtual conference for people affected by SIH due to spinal CSF leak and/or EDS and related disorders. The brain and spinal cord are surrounded by three protective membranes, the outermost of which is called the dura. infographic or our overview leaflet. Some serious complications such as stupor/coma or large subdural hematomas dictate emergent and more aggressive intervention. Spinal CSF Leaks as seen on Magnetic Resonance Imaging (MRI). Now have full feeling in ear ... Hi my name is Candice and I have a not found CSF leak. The one-day conference, presented by The ILC Foundation and Spinal CSF Leak Canada and titled “Pain: Shedding Light on the Inequities of Health,” features expert speakers such as Dr. Gray, Dr. Carroll and Dr. Schievink! It’s NOT like a runny nose like with a cold. It can occur in the head or spine as result of trauma, surgery, an underlying disorder or spontaneously. Exhausted ALL THE TIME. CSF leaks can occur anywhere along the craniospinal axis. Reason for a week in-between was since I got d/c from the hospital and the week I was home, I vomited multiple times a day and never lost the crippling headaches. Some strategies for conservative management/treatment of a spinal CSF leak are: Bedrest in a horizontal/flat position for 24 to 72 hours. Introduce yourself; Symptoms; Diagnosis; Treatment; Post-treatment ; Neurologic issues; Pain management ; Assistive devices; News and research; Heritable disorders of connective tissue; Dysautonomia; Nutrition & Supplements; Exercise & physical therapy; Disability insurance issues; … We believe in genuine connections, an atmosphere of trust, a desire for wellbeing, and meaningful impact. Complete bed rest for several days is usually recommended. Treatment Treatments for spinal CSF leaking vary from conservative to surgical procedures. The headache has gone from all day severe to now feeling better in the morning but getting worse ... Read More, This Support Community connects patients, loved ones and caregivers affected by spinal cerebrospinal fluid (CSF) leaks for informational and social support. A CSF leak, or cerebrospinal fluid leak, is a serious condition where there is a hole in the dura, the membrane which surrounds the brain and spinal cord, causing the clear fluid inside to leak out. The one-day conference, presented by The ILC Foundation and Spinal CSF Leak Canada and titled “Pain: Shedding Light on the Inequities of Health,” features expert speakers such as Dr. Gray, Dr. Carroll and Dr. Schievink! As a result of this ‘brain sag’, sufferers often experience severe and unrelenting head pain, pressure, visual disturbances, hearing impairment, tinnitus, spasms, seizures and a wide range of other symptoms. Learn more from Cleveland Clinic about causes, symptoms, treatment, recovery and more. The CSF Leak Association is a Scottish Charitable Incorporated Organisation (Charity No.